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The Forgotten 30%: Navigating Life with Persistent Post-Concussion Symptoms | E24

The Forgotten 30%: Navigating Life with Persistent Post-Concussion Symptoms | E24

June 30, 202556m 41s
Mental HealthCommunity

About This Episode

Chaandani Khan's story begins with a life derailed. Six years ago, a car accident left this high-achieving event planner with a concussion that transformed her world overnight. The woman who once thrived on 70-hour work weeks, constant travel, and a packed social calendar suddenly couldn't make a sandwich or find matching shoes. The cognitive fog was so thick that even basic tasks became mountains to climb.

What unfolds in this raw, vulnerable conversation is a journey through the challenging landscape of persistent post-concussion syndrome (PPCS). Chaandani shares how she navigated years of appointments with multiple practitioners—sometimes five days a week—while grappling with the profound question: "Who am I now that everything that defined me has been stripped away?"

The heartbeat of this episode is the critical gap Chaandani identified during her recovery: many healthcare providers, though well-intentioned, aren't truly "concussion-informed." She describes how practitioners might overwhelm patients with too much information delivered too rapidly, or fail to recognize when patients are "masking" their symptoms while internally struggling. With approximately 30% of concussion cases becoming persistent, this represents thousands of people potentially falling through the cracks.

Today, Chaandani has transformed her experience into a mission. She now educates practitioners on practical strategies to better serve their concussion patients—from slowing speech patterns to controlling environmental factors like lighting and sound. She's developing an online learning community for professionals launching in 2025, aiming to create systemic change that improves outcomes for all PPCS patients.

Connect with Chaandani at www.returntolife.ca and discover how her work is helping bridge the gap between patients and practitioners in the concussion recovery journey.

Email Chaandani: hello@returntolife.ca

Topics Covered

Mental HealthCommunity

Full Transcript

Dr. Ayla Wolf: 00:01 Hey listeners, ayla Wolf here. I've been talking about my book for six months now and I can finally say it's finished. You can find my book on Amazon. It is titled the Concussion Breakthrough Discover the Missing Pieces to Recovery. Just look for the light gray cover with a water colored puzzle piece brain and you'll be in the right spot. I'll put a link in the show notes as well. Dr. Ayla Wolf: 00:25 In this episode of the podcast, I have a very honest and open conversation with an absolutely wonderful soul, chandani Khan. I listened to her speak on a different podcast and I immediately looked her up because I knew I wanted to talk to her. Six years ago, a brain injury derailed Chandani's entire life, which left her navigating persistent post-concussion symptoms what she refers to as PPCS in the episode and an overwhelming amount of loss. Preparing a cup of tea, washing clothes and sending emails became monumental challenges, and her familiar fast-paced lifestyle appeared impossibly far out of reach. Going through years of recovery appointments and eventually ingraining herself in the concussion space allowed her to identify key gaps and the demand for a new…

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